9am: Carson is feeling better after 11 hours of sleep. He was very tired yesterday after a full day. The day started at 6:30am and was non stop. School, playing games, flying planes with Papa and then a big delicious dinner. He later got sick (after meds)and wanted to go to bed at 7pm.
Currently, Carson has a play mate over and I will try to limit his exhaustion today. Deb and Megan get home around 2pm.
We have 10 days before Carson starts his 3 night stay in the hospital. It will be 3 nights in, then 4 at home. He will do this 4 times over a course of 56 days.
Dinners, car pooling for Megan, dog feeding and general help will be needed by all of our dear friends and family. Debbie is afraid to ask, but I am not. :) We will need it.
Have a great day.
“Carson is strong”. “Thank you for caring”
Mike
4pm: I took Carson to the clinic today and his port worked (as he yelled at it, it started to flow better) and his counts are staying at an acceptable level (which is great). He is now playing.
Carson’s teacher will be here on Saturday. Now sure what else we are doing. He loves play dates.
Have a nice evening.
“Carson is strong”. “Thank you for caring”
Mike
4pm: Carson is feeling ok today. His allergic reaction is being minimized by his allergy meds. My little buddy wanted me next to him last night, so he slept in our bed and I gave him his meds at 10pm, 2 am and 6am.
Carson and I are going to the clinic Friday to check on his blood and counts, while Debbie and Megan head out to a cheer competition (Megan will cheer on her cheer team, what?). She is still in her cast. So its a guys weekend, party on dudes.
Keep the dinners coming, they are great and save us a bunch of time.
“Carson is strong”. “Thank you for caring”.
Mike
8pm. What a long day. Deb and Carson arrived at the clinic at 8 am and got home at 7pm. Carson’s port worked well today and his counts were good, but the blood work showed that he would need a bag of blood (its a 4 hour process). Carson was only getting 2 meds today, so we had hoped for a short day (5 hours), but after getting his shots to his legs, he had an allergic reaction and had to get more medicine and be monitored. He could not get his blood until this was taken care of.
Around 3 pm he got his blood and they got home just after 7 pm. Carson was able to nap a little at the clinic so he is full of energy right now and playing a game where he smashes up 2 lego cars heading at each other. He is so creative. A future engineer.
We are tired, so tonight’s dinner was a big help and was so delicious.
“Carson is strong”. “Thank you for caring”.
Mike
3pm: Due to Carson’s med schedule, he is on a 2 day cycle of no meds, so no side affects, therefore he is feeling great. Today, we went and played 3 holes of golf. He used his new clubs. We had a great time with his great uncle as our caddie.
Now Carson is with his teacher. Later, we are going to have a big dinner (thanks to our friends).
Last night, Debbie and I went our for her 29th birthday and had a nice quiet evening. This weekend will be our 3rd month of this wild journey. Only 4 more to go and then, 3 years of maintenance. Time flies….
Thanks again for the dinners and we are looking forward to seeing you on the golf course Feb 8.
“Carson is strong”. “Thank you for caring”
Mike