Sunday 3pm:  Carson is feeling pretty good today.  The nurse came to the house at 9am to give him his chemo.  It was a 4 day medicine so Carson had his tubes hanging out from his port.  She removed them today (he is free to swim and wrestle, and hurt dad).

Carson had a great day yesterday.  We went to a party and then he went to his friend’s house to watch movies and play.   Friday was not a good day.  He woke up with a headache, then his nurse came to the house and he was sick for most of the remaining day.  He just slept and watched TV.

Carson goes back to the clinic on Thursday for more chemo and another 4 day routine (so he will again be accessed from Thurs to Sun).   Then we go back a few more times before starting cranial radiation.  This will be 10 days of treatment that lasts about 10 minutes per day.  There is no pain or shots, just beams of light.

Carson will probably begin his 3 year maintenance program around June 21.

We love our little guy so much.  I do not know how he does it, but for everything that is thrown at him, he takes it and fights on.  There is a lot of crying and sadness, but Carson is a fighter.  We continue to have positive thoughts and look forward to the day where can be a normal family.

If you are having a bad day, or if you are too caught up in this fast moving world, or would like to be grounded and see what really goes on, let me know and you can be our guest Thursday when we head back to the clinic.  It is real life.  It will put things in perspective, it will touch your soul.

We love our little slugger so much.

“Carson is strong”.  “Thank you for caring”