9am: Carson is feeling pretty good. He is having some small side effects to his hands and joints from some of the meds. It is limiting his full ability to write and pick things up. Yesterday was a fun day here at our house. Some friends came over, we watched football, the children played and I made a big dinner. BBQ tri-tip (yummy) and all of the fixins.
Carson is excited and nervous about today and the golf tourney. He will make 2 guest appearances. Once at the beginning and then later during the awards.
Have a great day.
“Carson is strong” “Thank you for caring”
Mike
10am: Carson is reacting to his meds as per the docs said so. His counts are down a little, but is feeling pretty good. Currently he is with his teacher and taking some tests.
Wednesday is the big day (if his counts are high enough) when Carson goes to the clinic and then will stay in the hospital for 3 nights.
So for today and the next few days we are somewhat of a normal family. Our schedule will obviously be thrown off next week.
Monday- Golf tourny
Tuesday- Megan goes to doc for ankle check up
Wed- Carson to clinic and hospital
Have a great day and go New Orleans Colts….
“Carson is strong” “Thank you for caring”
Mike
8:30am We went to the clinic yesterday and Carson’s port worked. We met with the doctor and Carson is doing well. He got his meds and we were out of there in only 4 hours. Carson then played the rest of the day and only had a few side affects.
Today, he is bored. We are trying to keep him occupied, while introducing new ideas and toys to play with.
The dinners continue to be outstanding and save us time and energy. Keep them coming.
The Little Slugger golf tourney is this Monday and it is going to be fun. I am sure that many laughs and tears will be seen and heard.
Have a nice day.
“Carson is strong” “Thank you for caring”
Mike
8am: Carson is feeling great. Yesterday was an exciting day. It started with school, then a play date, then hanging out with dad, dinner and then the Make a Wish people came to our house. After 2 hours of talking, interviewing, and a tour of the mini lego land here at the house, Carson came us with a few ideas for his Wish. He can change it anytime, but for now, the gracious folks at MAW are putting some things in motion.
Mondays and Tuesdays are good for Carson because he is not taking any meds. We go back to the clinic tomorrow and hopefully his counts are high enough so that he can take his meds. One more week and then he has to stay in the hospital for 3 nights as he begins his next 56 days of treatment. We have a schedule that indicates his time in the hospital (could change due to counts), but for now he will stay 12 nights at Rady Children’s Hospital spread out over those 56 days.
The dinners are great and the golf tourney is right around the corner….
“Carson is strong” “Thank you for caring”
Mike
9am: Carson is feeling better after 11 hours of sleep. He was very tired yesterday after a full day. The day started at 6:30am and was non stop. School, playing games, flying planes with Papa and then a big delicious dinner. He later got sick (after meds)and wanted to go to bed at 7pm.
Currently, Carson has a play mate over and I will try to limit his exhaustion today. Deb and Megan get home around 2pm.
We have 10 days before Carson starts his 3 night stay in the hospital. It will be 3 nights in, then 4 at home. He will do this 4 times over a course of 56 days.
Dinners, car pooling for Megan, dog feeding and general help will be needed by all of our dear friends and family. Debbie is afraid to ask, but I am not. :) We will need it.
Have a great day.
“Carson is strong”. “Thank you for caring”
Mike